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Florida court rejects AIDS Healthcare Foundation鈥檚 bid for emergency injunction to stop cuts

Participants take part in an HIV/AIDS awareness event held by Big Bend Cares in Tallahassee. Thousands of HIV/AIDS patients across the nation who rely on state drug assistance programs are affected by new eligibility limitations. Federal funding for such programs has remained flat for years. State Surgeon General Joseph Ladapo has issued two sets of emergency rules for AIDS Drug Assistance Prorgram in the last two months.
Bob O'Lary/Courtesy of Big Bend Cares
/
Florida Phoenix
Participants take part in an HIV/AIDS awareness event held by Big Bend Cares in Tallahassee. Thousands of HIV/AIDS patients across the nation who rely on state drug assistance programs are affected by new eligibility limitations. Federal funding for such programs has remained flat for years. State Surgeon General Joseph Ladapo has issued two sets of emergency rules for AIDS Drug Assistance Prorgram in the last two months.

A circuit court judge has ruled that the administration of Gov. Ron DeSantis can push ahead with reductions to a program that helps people with HIV and AIDS purchase life-saving drugs.

Circuit Judge Jonathan Sjostrom in Leon County denied the AIDS Healthcare Foundation鈥檚 request for an emergency injunction to stop emergency rules from taking effect that no longer make available Biktarvy, a daily pill used to suppress HIV viral loads and prevent people from spreading the virus that causes AIDS. Approximately 32,000 people obtain the drug through the program.

To obtain an emergency injunction, the AHF had to show it would likely succeed on the merits of its case 鈥 that its clients would face irreparable harm and that the balance of hardship is in their favor.

鈥淚t鈥檚 not hard to make an argument that the public interest favors granting relief 鈥 same thing with irreparable harm absent injunctive relief,鈥 Sjostrom said, ruling from the bench. 鈥淭he problem is element Number One, substantial likelihood of success on the merits, and that fails in my view on separation of powers and justiciability, also on the deference to be afforded by the declaration of an emergency.鈥

The judge acknowledged there鈥檚 鈥渁 pretty good argument to be made鈥 to the Department of Health鈥檚 contention that Florida statutes require challenges to emergency rules to be filed in an appellate court and not circuit court.

Sjostrom said that, based on the pleadings filed by the AHF attorneys, he was inclined to dismiss the case. But he鈥檇 agreed to the two鈥揹ay hearing and lengthy testimony because of the importance of the issue.

鈥漈o the people who are going to be affected, there is absolutely no doubt that this is an emergency situation. 鈥 It鈥檚 a judicial emergency, regardless of the analysis of the surgeon general鈥檚 statement of an emergency and that鈥檚 why we鈥檙e here,鈥 he said.

The AHF鈥檚 emergency injunction, had it been granted, would have returned eligibility for the ADAP program to 400% of the federal poverty level, or $63,840 annually, and would have allowed patients to continue to access Biktarvy.

Alleging a $120 million deficit in the program, the DeSantis administration reduced eligibility for ADAP participation to 130% of the federal poverty level, or about $20,748 annually. It also eliminated access to Biktarvy.

The AHF did not have an immediate comment Monday on Sjostrom鈥檚 ruling.

But in her closing arguments, AHF attorney Louise Wilhite-St Laurent said there are statutory requirements for emergency rules and that the emergency rules issued by the department for ADAP doesn鈥檛 meet those standards.

She also argued the rules were vague. The department says it doesn鈥檛 have necessary funds to keep the program afloat for calendar year 2026 and that it could have to terminate services to everyone in the program if the changes weren鈥檛 made.

鈥淚t is not definitive. It is not specific. And that is what鈥檚 required to justify an emergency in addition to having a sudden or unforeseen event,鈥 she said 鈥 adding that the DOH has provided no evidence of 鈥渨hat the actual emergency is or that there is actually no funding.鈥

Wilhite-St Laurent specifically was referencing testimony Monday from Lacandria Churchill, a DOH employee in the ADAP program. She said the department had received $42 million in drug rebates for the program in the past two and a half weeks. During cross examination from DOH outside counsel Ed Lombard, she said the department wasn鈥檛 鈥渇lush鈥 and that the money is being used to pay outstanding bills for the program.

It鈥檚 the latest legal setback for the AIDS Healthcare Foundation, as two separate legal challenges to the DeSantis administration鈥檚 efforts to scale back the program have been stalled by the DOH.

A third legal challenge, filed to a pair of emergency rules drafted last week, is scheduled for state administrative court on March 30.

The latest emergency rules, which took effect immediately, return the eligibility program back to 400% of the FPL through June 30. Additionally, the emergency rules make clear the state cannot assist ADAP clients with premium assistance and the life-saving drugs the patients require must be directly distributed to the clients by the state. But the rules make clear those changes don鈥檛 take effect until April 1.

Those changes track legislative direction contained in HB 697. The legislation, which includes an additional near $31 million for ADAP funding, was sent to Gov. Ron DeSantis last week. He has until April 2 to sign it, veto it, or allow it to become law without his signature.

鈥淚 regret that there鈥檚 nothing else that I have any authority to do to help these people who are in such desperate need of help,鈥 Sjostrom said. 鈥淭ake what is probably cold comfort in speculating that the $31 million suggests that you鈥檙e in the right place now, and I am hopeful that more relief is coming.鈥

鈥淚鈥檓 praying that I don鈥檛 die鈥

Sjostrom鈥檚 from-the-bench ruling wrapped up two days of testimony in the hearing.

In that time AHF called a number of witnesses, including 37-year-old Lorenzo Davis, who testified that he鈥檚 worried for his life.

Davis testified that he has been an ADAP client since being diagnosed with HIV when he was 16 years old. He has been taking Biktarvy, which he has accessed through both premium assistance when he was insured and through direct dispensing.

Davis testified Friday that he won鈥檛 be able to afford Biktarvy without assistance from the ADAP program.

鈥淚 don鈥檛 know what to do right now. I鈥檓 like panicking to be honest with you,鈥 he testified under oath.

Davis said his viral levels are undetectable, which means that he can鈥檛 spread the virus. But he also said that his immune system is weak and he worries what will happen in the coming days and months.

A recording artist, Davis said he doesn鈥檛 qualify for Medicaid or Medicare and lacks access to commercial health insurance.

鈥淚鈥檓 praying that I don鈥檛 die if I don鈥檛 have access to medication,鈥 he said.

is part of States Newsroom, a nonprofit news network supported by grants and a coalition of donors as a 501c(3) public charity. Florida Phoenix maintains editorial independence. Contact Editor Michael Moline for questions: info@floridaphoenix.com.

Christine Sexton has spent more than 30 years reporting on Florida health care, insurance policy, and state politics and has covered the state鈥檚 last six governors. She lives in Tallahassee.
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